Mass Market Paperback ã Journey PDF å

Mass Market Paperback ã Journey PDF å

Journey ☃ [PDF / Epub] ☂ Journey By Robert K. Massie ✑ – Larringtonlifecoaching.co.uk Journey is Robert and Suzanne Massie s memoir of raising their hemophiliac son in the s, and the significant differences they found between the American and French healthcare systems Journey is Robert and Suzanne Massie s memoir of raising their hemophiliac son in thes, and the significant differences they found between the American and French healthcare systems.


10 thoughts on “Journey

  1. Cindy Cindy says:

    Read this as a teenager and I remember that it really affected me I loved how the chapters were alternately written by the mother and father The Massies recount their journey of raising a son who is a hemophiliac.I found the photographs haunting, and felt a real connection with the son I hope I can find this book and read it again.Bought it used from B N and started it last night I was planning to reread this before looking up the current status of the disease s treatments But I couldn t Read this as a teenager and I remember that it really affected me I loved how the chapters were alternately written by the mother and father The Massies recount their journey of raising a son who is a hemophiliac.I found the photographs haunting, and felt a real connection with the son I hope I can find this book and read it again.Bought it used from B N and started it last night I was planning to reread this before looking up the current status of the disease s treatments But I couldn t wait so I goggled it last night The son Bobbie is a year older than I am and he has had a most fascinating life up to this point Just a few years ago he had a living donor liver transplant and is now cured The donor has 55 to 70% of their liver removed In 4 6 weeks the donor s liver is fully functional and shortly thereafter it grows back to it s original size Remarkable This is not done to cure hemophilia but Bob had hepatitis 3 which destroyed his liver The liver makes the blood s clotting factors so being cured of hemophilia was a bonus In the 1970 s when hemophiliacs were getting aids from transfusions, Bob didn t He was immune to aids so scientists have studied him carefully Aside from the unusual medical history, Bob has had an interesting life An Episcopal minister, crusader against apartheid,and a politician to name a few of his accomplishments.As far as reading Journey BRILLIANT Really loved it the second time around It s out of print so if any of my friends wish to read it, I ll bethan happy to loan it out It s odd to read the medical costs that the Massie family incurred with this disease Compared to today s prices 50 years later, it s like a 1000% increase With the current health care policy debates, this story is as timely as ever It s dreadful but it seems we have made no progress at all Massie is the author of Nicholas and Alexandra which he researched and wrote about because his own son was a hemophiliac I read that many years ago and loved it too Last fall I read his latest book Catherine the Great Massie is a superb historical author


  2. Lynne Lynne says:

    An intimate look at the life of a family living with chronic illness Rather than write as we, Massie and his wife Suzanne wrote the book in alternating chapters labeled with their initials Journey is brutally honest and at times painful to read Suzanne writes of the crushing fatigue brought on by the eternal vigilance it took to keep an inquisitive, active little boy with hemophilia from tripping over the coffee table or falling down the steps, the pain of watching their son trying to make An intimate look at the life of a family living with chronic illness Rather than write as we, Massie and his wife Suzanne wrote the book in alternating chapters labeled with their initials Journey is brutally honest and at times painful to read Suzanne writes of the crushing fatigue brought on by the eternal vigilance it took to keep an inquisitive, active little boy with hemophilia from tripping over the coffee table or falling down the steps, the pain of watching their son trying to make friends at school when he couldn t always join his classmates kicking a football around the playground, the misunderstandings of the general public, the enormous financial burden the illness imposed on the Massie family She writes of sitting up with him when he was in excruciating pain from a bleeding into his joints Robert writes about his work as a writer, showing how his son s hemophilia spurred his interest in the Tsarevich Alexei of Russia, leading him to write Nicholas and Alexandra He tries to raise awareness about America s completely effed up free market medical system This was the mid 1970 s He hadn t seen anything yet


  3. Christine Morse Christine Morse says:

    Author s son has hemophilia like the Tsar s son did This is his story Another reason I m hooked on anything by Robert K Massie Never disappointed by his books, history or memoir.


  4. Rachel Jackson Rachel Jackson says:

    Like many people who have read Journey, presumably, I ve been a fan of Robert K Massie s writing since I read Nicholas and Alexandra when I was a little girl, which is what led me to pick up this book at a used bookstore The author s name alone was enough to entice me to the book, and I was not disappointed Robert Massie and his wife, Suzanne, tell the stressful and hectic tale of their son s journey with hemophilia, speaking as parents and personal healthcare providers and crusaders for bett Like many people who have read Journey, presumably, I ve been a fan of Robert K Massie s writing since I read Nicholas and Alexandra when I was a little girl, which is what led me to pick up this book at a used bookstore The author s name alone was enough to entice me to the book, and I was not disappointed Robert Massie and his wife, Suzanne, tell the stressful and hectic tale of their son s journey with hemophilia, speaking as parents and personal healthcare providers and crusaders for better treatment Robert Massie s experience and interest in hemophilia, on this personal level, is of course what prompted him to research and write Nicholas and Alexandra, and reading his personal struggle with the disease alongside the process to write a historical account of the famous disease of kings provided an entirely new insight to that book.Alternatingly narrated by Robert and Suzanne Massie, and, at times, with young Bobby Massie adding commentary along the way, the book is a very personal and informative look at the life or someone with a chronic illness It could be a dull memoir, of the Massies seeking sympathy and telling a spiritual story of how they overcame struggles, but Journey was so muchthan that It was a memoir, yes, but also a journalistic endeavor, an expose, a proposal all of these would be genres came together in a very strong narrative tale about how American healthcare should be reformed same discussions forty years ago as there are now to better suit its patients, and how drug companies are throwing patients under the bus, and even how charities and rich celebrities skew policy agendas for their own fame and greed rather than the good of a society.I was thrilled that the same journalistic and straightforward fact telling that Robert Massie included in all his books about Russian monarchs was also much at play in Journey it was his style of writing, combined with areflective, perhaps motherly style of his wife, that made the book a very insightful, engaging read I learned very much about hemophilia, of course, but also blood types and transfusions, healthcare policies, pharmaceutical companies, andThese were the same subjects that the Massies went on justifiable rants about, and I loved it The book was fascinating and beautifully written as a memoir but also memorable enough to be a fight for what they believed was right Although the subject could be a bit esoteric at times and both Massies had an annoying tendency to wax eloquent for too long sometimes it was clearly a long labored effort that paid off to tell their story in their own words


  5. Grace Hoffmann Grace Hoffmann says:

    Pretty interesting although depressing story of the Massie family s struggle with hemophilia The parents writing style seems very dated to me, but the story is a compelling one Bobby, the son with hemophilia, was so unfortunate to have this disease but pretty fortunate to have parents determined for him to have as many opportunities as possible I heard someone on the radio mention this book and tracked it down I don t really recommend it unless you re interested in hemophilia or family life Pretty interesting although depressing story of the Massie family s struggle with hemophilia The parents writing style seems very dated to me, but the story is a compelling one Bobby, the son with hemophilia, was so unfortunate to have this disease but pretty fortunate to have parents determined for him to have as many opportunities as possible I heard someone on the radio mention this book and tracked it down I don t really recommend it unless you re interested in hemophilia or family life with a chronic illness


  6. Sherry Sherry says:

    Read this so many years ago veryGood


  7. Ann Costello Ann Costello says:

    Read this the first time decades ago But I liked it better this time The Massies write alternating chapters on the process of caring for their son who suffered from hemophilia by turns harrowing and joyous This experience sparked the couple s interest in the history of this disease which led to several books on the Russian royal family Really good.


  8. Debra Debra says:

    Read this around 1975 76 Great insight to the experience of raising a son with hemophilia Certainly provided context to the Massie s research and writing Nicholas and Alexandra I wonder how much, if at all, the treatment of disease has changed since the 1970 s.


  9. Lisa of Hopewell Lisa of Hopewell says:

    This book taught me about the unexpected in life Who knew when I read it in high school that I, too, would have a special needs son and that this books was good preparation for that


  10. Judy Judy says:

    The Massies wrote this book about their son who had hemophilia That is how they became interested in the Romanovs and wrote the wonderful book Nicholas and Alexandra.


Leave a Reply

Your email address will not be published. Required fields are marked *